Family Stigma Associated With Epilepsy: A Qualitative Study
نویسندگان
چکیده
Introduction: Harmful nature of epilepsy can affect the patient and their parent. Stigma, arising from it, affects the patient and their family. To relieve it understanding the experiences of the parent are useful. This study was aimed at understanding the experiences of parent of child with epilepsy in Iran. Methods: In this interpretative phenomenological study, 10 parents who took care of their child with epilepsy were participated. Data were collected through in-depth semi-structured interviews. After transcription, data were analyzed using Van Manen's method. Results: Family stigma emerged as a main theme in data analysis with three subthemes including becoming verbally abusive, a dull and heavy shadowed look, and associates interference. Conclusion: Family stigma is a major challenge for parents of child with epilepsy need to special attention by health system. Nurses, as a big part of the system, can play an important role to manage this problem.
منابع مشابه
Structural Modeling of Relationship Between Disease Stigma and Social Anxiety by Considering the Mediating Role of Family Function in Patients With Epilepsy
Background and Objective: Epilepsy is one of the most common and chronic neurological diseases that can cause many psychological problems for people with this disease. The purpose of this study was to investigate the relationship between disease stigma and social anxiety considering the mediating role of family function in patients with epilepsy. Methods: The study design was descriptive-corre...
متن کاملبررسی داغ اجتماعی در بیماران مبتلا به صرع و تاثیر آن بر فاکتورهای روانشناختی
Introduction: Despite advances in the diagnosis and treatment of epilepsy within the past several decades, people suffering from this disorder continue to be stigmatized. Stigma is a psychological social process that begins with labeling and leads to social avoidance as well as social isolation. In many people suffering from epilepsy, stigma is held to adversely impact their psychological well-...
متن کاملA Scoping Review of Questionnaires on Stigma of Mental Illness in Persian
Background: Patients with mental illness generally face two major issues related to their disorder. They should deal with not only different signs and symptoms of their disorder (including anxiety, delusion, hallucination etc.), but also with the concomitant social stigma of mental illness. Families of the patients with mental illness usually feel embarrassed and guilty about the disorder of th...
متن کاملAn Indian Study on Perceptions of Patients of Epilepsy and Their Family to Stigma and Its Impact on Quality of Life
Background: Epilepsy stigma has been considered to be one of the most important factors that have a negative influence on the people with epilepsy and their family. This research was undertaken to study the perceptions of epileptic patients and their family to the disease and its associated stigma and the impact of stigma on the quality of life of patients with epilepsy. Material &Method: Infor...
متن کاملPopulation-Based Study of Epilepsy in Cambodia Associated Factors, Measures of Impact, Stigma, Quality of Life, Knowledge-Attitude-Practice, and Treatment Gap
PURPOSE Identify epilepsy-associated factors and calculate measures of impact, stigma, quality of life (QOL), knowledge-attitude-practice (KAP) and treatment gap in Prey Veng, Cambodia. METHODS This first Cambodian population-based case-control study had 96 epileptologist-confirmed epilepsy cases and 192 randomly selected matched healthy controls. Standard questionnaires, which have been used...
متن کامل